tag:blogger.com,1999:blog-32402621371858090242024-03-12T23:21:09.386-05:00Eleanor's LifeSpend a day in the life of the Guilford’s…our journey through life with a little girl named Eleanor who is a spunky, adorable three year old…she just happens to have Cystic Fibrosis…The Guilfordshttp://www.blogger.com/profile/06724639221544789087noreply@blogger.comBlogger78125tag:blogger.com,1999:blog-3240262137185809024.post-86318778422366326552012-05-01T22:36:00.001-05:002012-05-01T22:39:32.013-05:00<a href="http://www.youtube.com/embed/6jbmZqgfTaw" target="_blank">http://www.youtube.com/embed/6jbmZqgfTaw</a><br />
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We put together a little video for Eleanor's CF. This is a little peek into her world.<br />
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We cultured Staph again so we are on Cipro again and we are back on TOBI...<br />
ColeenThe Guilfordshttp://www.blogger.com/profile/06724639221544789087noreply@blogger.com0tag:blogger.com,1999:blog-3240262137185809024.post-19978111792670372582012-04-03T15:02:00.000-05:002012-04-03T15:02:04.189-05:00Cipro done!!<em><span style="color: #a64d79; font-family: Georgia, "Times New Roman", serif;">Yeah!! So excited that the Cipro is done!! She is coughing only a little and her chest sounds better. Pray that the Cipro did get rid of her Staph in her lungs. I think it did but we will not know until we get back from the doctor on April the 19th. </span></em><br />
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<em><span style="color: #a64d79; font-family: Georgia;">Eleanor has been pretty good about taking the Cipro even though I know it must taste horrible. I have been so proud of her! So as a surprise she received a full size Aladdin and Jasmine doll in the mail. She is sooo excited!!</span></em><br />
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<em><span style="color: #a64d79; font-family: Georgia;">She continues to be a good big sister to Thomas! Thomas always has a smile for his big sister and really seems to adore her! What a blessing they are together! </span></em><br />
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<em><span style="color: #a64d79; font-family: Georgia;">We are now in the fundraising season of CF....</span></em><br />
<span style="color: #a64d79; font-family: Georgia;"><em>We are selling Belk Charity Sale tickets for $5.00, BBQ plate tickets for May 4th, and I have set up my page for donations at </em><span style="color: black; font-family: Times New Roman;"><a href="http://www.cff.org/Great_Strides/ColeenGuilford8098">http://www.cff.org/Great_Strides/ColeenGuilford8098</a>. </span></span><br />
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<em><span style="color: #a64d79; font-family: Georgia, "Times New Roman", serif;">Thank you so much for your support and prayers more update and pictures to come!</span></em><br />
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<em><span style="color: #a64d79; font-family: Georgia;">Happy Easter!! Christ is Risen!! HE is RISEN INDEED!!<br />
Coleen, Robert, Eleanor and Thomas</span></em>The Guilfordshttp://www.blogger.com/profile/06724639221544789087noreply@blogger.com1tag:blogger.com,1999:blog-3240262137185809024.post-19751739591980401162012-03-15T23:57:00.000-05:002012-03-15T23:57:46.470-05:00Eleanor update<span style="color: purple; font-family: Georgia, "Times New Roman", serif;"><em>We are offically on Cipro! Yea and boo! So happy we can get it in her body and get the Staph infection out. Boo that her tummy has already started hurting. We are doing probiotics to help her but just pray that they work for her throughout this 21 day regimen we are on.</em></span><br />
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<span style="color: purple; font-family: Georgia;"><em>Eleanor didn't take a nap today or yesterday and it seems to have caught up with her. I am pretty sure that those of you who know me know that I really like her to take a nap when she is not having trouble with anything. She just acts better because she is more rested. I KNOW, I know she is four but her body is different than most four year olds. Now that she is fighting this infection in her lungs she seems to be more tired. Ever since she started the Cipro her cough seems to have gotten worse and she just seems to be a little out of sorts. All of that to say that two days of no napping means a tired, ill little girl. </em></span><br />
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<span style="color: purple; font-family: Georgia;"><em>Since she didn't take her nap today I announced that she would go to bed early. As any of you CF Mama's know out there that can be quite an undertaking! She normally goes to bed around 9 - 930. Tonight she was in bed at 815. I was quite sure we would have some moments where she would come out of her room with the normal excuses as to why she could not go to sleep. However, she went straight to sleep. Not ONE peep from her! This tells me how tired she was. She rarely does this and tells me just how much of a toll her CF is taking on her right now.</em></span><br />
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<span style="color: purple; font-family: Georgia;"><em>Please pray for her body to rest and repair itself while she is asleep and that she will take her naps so she can feel normal. I pray that she wakes up tomorrow morning and this good nights rest helps her to feel rested and great in the morning.</em></span><br />
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<span style="color: purple; font-family: Georgia;"><em>Much Love,</em></span><br />
<span style="color: purple; font-family: Georgia;"><em>Coleen</em></span>The Guilfordshttp://www.blogger.com/profile/06724639221544789087noreply@blogger.com0tag:blogger.com,1999:blog-3240262137185809024.post-48655164933142006782012-03-13T00:29:00.000-05:002012-03-13T00:29:16.123-05:00Culture update...I called this morning and Eleanor cultured Staph. Ugh! This is the first time she has cultured it. The nurse knowing my tendancy to freak out told me to not worry! :) I know, right! She is right thought it does me no good to worry. The cipro the doctor prescribed for Eleanor will take care of the Staph in her lungs so we are good! I pray this helps her lungs to feel better. Keep praying for her...she had a really good day as far as attitude and eating today. I could feel the prayers! I cannot tell you how much it means to me to know we are constantly wrapped in prayer. It makes me smile! <br />
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Eleanor ate such a good lunch today at Simple Simon's Pizza in Dothan. I was ready to go and she said, "Wait mommy! I want another piece of pizza!" Boy was that music to my ears! <br />
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We should start the Cipro tomorrow. Please pray it kills all the bad stuff and doesn't cause any tummy troubles.<br />
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ColeenThe Guilfordshttp://www.blogger.com/profile/06724639221544789087noreply@blogger.com4tag:blogger.com,1999:blog-3240262137185809024.post-86654527102850283052012-03-08T22:36:00.000-06:002012-03-08T22:36:54.049-06:00Eleanor's latest CF VisitWe just got back from our day long journey to Pensacola to see the CF doctor. It is always an adventure when we go to Pensacola. Especially now that we have Thomas, who is now five months, to go along for a whole day confined to either a car seat or a stroller. Today Grami and Pawpaw went with us and helped make the trip so much better! <br />
Some background: Eleanor has had a on and off stuffy nose and just in the last week a crappy sounding cough. She also has started having a hard time dealing with certain things...mostly because lack of sleep and today we found out another reason.<br />
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So the great news is that we gained 1.3 pounds since December. I think that I can speak for Robert and I both when I say, "YEAH!!!!" We have worked extra hard to get some weight on her. She knows the routine when we check in and she gets her vitals done. The Respiratory tech tried to get her to blow in the macine that will measure her PFTs but she said she was scared. I knew something was off when she said that. So one of my prayer request is to pray that at our next visit she steps up and blows in the machine. I know she can do it! Last time she did very good with getting her culture and this time she freaked out a little bit but we did get it done.<br />
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She then saw the doctor and we talked about several things. One thing being that the flu is going around Hartford so I asked about going to church. You see we do not live in a bubble with Eleanor but we also try to make sure to keep her out of "for sure" bad situations. I hope that makes sense. She has her flu shot but since the flu is prevelant the doctor said we might take a break for a week or two from church to let it run its course. I hate this because she loves going, but I know it is best for her right now.<br />
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Another thing we talked about was Eleanor's cough. It is a yucky cough and after listening to her the doctor said she heard the dreaded crackling in the lungs. So we are on an extra one or two vest treatments with her xopenex. Doc went ahead and prescribed Cipro for 21 days. We hope this clears the crud out!! So pray she can maintain a good attitude with all of the extra stuff. She has done good since her other new treatments we added last time, but lately she has been a bit off in her attitude. Pray that this medicine helps clear her lungs and helps get her back to the peppy Eleanor we know.<br />
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We go back April 19th as a follow up appointment to see how she is doing. We appreciate all of our prayer warriors.<br />
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We get our culture back on Monday...will try to update that next week.<br />
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ColeenThe Guilfordshttp://www.blogger.com/profile/06724639221544789087noreply@blogger.com1tag:blogger.com,1999:blog-3240262137185809024.post-2903042849748414282012-01-20T15:52:00.001-06:002012-01-20T15:52:25.993-06:00Thomas is born!<object name="Slideshow" id="Slideshow" width="425" height="425" align="middle" codebase="http://download.macromedia.com/pub/shockwave/cabs/flash/swflash.cab" classid="clsid:d27cdb6e-ae6d-11cf-96b8-444553540000"><param name="movie" value="http://www.shutterfly.com/flashapps/flashslideshow/Slideshow.swf" /><param name="flashvars" value="configurl=http%3A%2F%2Fcmd.shutterfly.com%2Fcommands%2Fpictures%2Fgetshareoutslideshowconfig%3Fsite%3Dguilfordfamilyphotos%26page%3Dguilfordfamilyphotos%26node%3D966" /><param name="allowscriptaccess" value="always" /><embed id="Slideshow" width="425" height="425" name="Slideshow" align="middle" quality="high" type="application/x-shockwave-flash" flashvars="configurl=http%3A%2F%2Fcmd.shutterfly.com%2Fcommands%2Fpictures%2Fgetshareoutslideshowconfig%3Fsite%3Dguilfordfamilyphotos%26page%3Dguilfordfamilyphotos%26node%3D966" pluginspage="http://www.adobe.com/go/getflashplayer" allowscriptaccess="always" allowfullscreen="true" bgcolor="#869ca7" src="http://www.shutterfly.com/flashapps/flashslideshow/Slideshow.swf"></embed></object><p style="width:425px;margin-top:0;text-align:center;"><a href="http://guilfordfamilyphotos.shutterfly.com/966?eid=115">Click here to view these pictures larger</a><img width="1" height="1" border="0" style="padding: 0; background: #ffffff; border: none; box-shadow: none;" src="https://os.shutterfly.com/b/ss/sflyshareprod/1/H.15/111?pageName=sharekey&c1=pictures&c2=blogger" /></p>The Guilfordshttp://www.blogger.com/profile/06724639221544789087noreply@blogger.com0tag:blogger.com,1999:blog-3240262137185809024.post-88810022984434515072012-01-20T15:48:00.000-06:002012-01-20T15:48:19.488-06:00Birth Announcement...to 3.5 months old~~Hey,<br />
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I know I am behind...most of you know by now that Thomas Harold Guilford arrived on October 7, 2011! He is precious and looks like he is going to have red hair like his Eleanor! He arrived via C-section, after a day of being induced, at 11:00 pm. It was a special day as it was my grandmother's birthday and his middle name was her husbands first name. :)<br />
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Thomas is growing like a weed and he has a VERY PROUD Big Sis! Eleanor loves him so much! She wanted to wear her big sis shirt everyday after he was born! I am also happy to announce that Thomas is only a carrier of CF!! Praise the Lord he was born CF free!<br />
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Eleanor has enjoyed her baby brother very much. She is learning the ropes of having a baby brother in the house and for the most part has done very well with the transition. <br />
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As for her CF, we have a new CF doctor and Eleanor loves her! The doc is very attentive to Eleanor and very thorough. I cannot complain. We did leave with some new treatments. We are now on Xopenex, Saltwater 7%, and the quick start vest treatment. The vest treatment is definately helping the "little green men" that were in her chest the doctor heard at our appointment. It is also very vigorous. She cannot talk very well while it is going but as always she is taking it like a champ. She takes her "salt" very well. I have heard it is like breathing sandpaper when you are not used to it but she only mentioned that it tastes really bad. She takes it twice a day now along with the Xopenex. She also was on two antibiotics for strep that showed up on her last culture. She took them like a big girl even though one smelled horrible!<br />
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The other challenge we faced was that she only gained .5lbs in six months. This was not great news but kind of expected by Robert and I since she is not wanting to eat. We have amped up her diet so we can put on the pounds without other measures right now. She now drinks supermilk...whole milk with 1/4 cup heavy cream and chocolate syrup. Bacon, two pieces every morning, lots of homemade ranch dip, and smoothie (more like high calorie milkshakes!)<br />
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She is doing good with all the new changes in her life. Pray for her to have a attitude of wanting to eat and continue to take her treatments. <br />
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She will turn 4 on the 28th of this month! We are having a gymnastics party and she is super excited! Hope to do better with the blog and will link some pix of thomas!<br />
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Her culture came back normal from her visit and that is a definate praise!!<br />
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ColeenThe Guilfordshttp://www.blogger.com/profile/06724639221544789087noreply@blogger.com1tag:blogger.com,1999:blog-3240262137185809024.post-83817667304036763832011-10-04T15:31:00.000-05:002011-10-04T15:31:31.690-05:00Eleanor is going to be a Big Sis this Friday!We are pretty much moved in now and a good thing too because baby boy is scheduled to arrive this Friday! I went to the doctor today and my blood pressure was a little high when I arrived but after laying on my left side it went down. Doctor says when I am this late in the pregnancy (will be 39 weeks this Friday) and the blood pressure starts getting high it is time to have the baby. So I will report to the hospital on Thursday to be induced on Friday morning. <br />
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I am ready for him to arrive and for Eleanor to see him. She has been asking when his birthday is going to be for a week now and now we can tell her. We would have never been able to plan it like this but this Friday is my Grandma Shank's birthday (she died almost a year ago) so this is already a special day and it will be even more special when he arrives.<br />
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Keep us in your prayers on Friday and I will do my best to get his name and picture uploaded when we get home.<br />
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ColeenThe Guilfordshttp://www.blogger.com/profile/06724639221544789087noreply@blogger.com1tag:blogger.com,1999:blog-3240262137185809024.post-45933176080573461602011-08-23T22:23:00.000-05:002011-08-23T22:23:26.709-05:00Moved but not quite moved in...<span style="color: magenta; font-family: Georgia, "Times New Roman", serif;">Well, we have moved and are now in Hartford, AL. This moved happened so fast that it is still hard to believe that we are in Hartford. Two months ago if you have told me that I would be in Hartford in August, I honestly would have thought it was crazyiness. Robert was offered a job opportunity in the town he grew up in and after much prayer and wrestling with what we were to do we felt it was the Lord's will that we move back to Hartford.</span><br />
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<span style="color: magenta; font-family: Georgia;">It was a VERY hard decision to make since it meant uprooting our lives with me being 7 months pregnant. Leaving our church family and friends behinds was very difficult for all three of us, but everything has worked itself out according to His plan. Eleanor misses her friends but is having a ball up here in church. There are several girls her age she loves to play with at church. You didn't think she was going to have a hard time finding friends, did you? :)</span><br />
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<span style="color: magenta; font-family: Georgia;">Another benefit is that Robert's work is only three minutes down the road. He was driving 45 minutes one way when we were in Florida. We get to enjoy much more family time as he comes home for lunch and get home a little after four in the afternoon. I have to say it is wonderful to spend more time together as a family. Speaking of family we are now much closer to both set of grandparents and I believe that it makes both sets very happy. Eleanor is getting used to seeing her grandparents on a weekly basis rather than a monthly basis. This truly makes my heart happy.</span><br />
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<span style="color: magenta; font-family: Georgia;">We are settling in up here and trying to get everything in order for baby boy's arrival. He is doing well. My last appointment was on August 9 and he weighed 3.5 lbs and changed from head down to transverse (parallel to the ground). He seems to change back and forth between the two positions making me rather uncomfortable sometimes but what a wonderful feeling it is to feel him move inside of my belly!! Prayers that he will turn head down and stay that way. My next appointment with my new OB is next week. I will let you know how the appointment goes.</span><br />
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<span style="color: magenta; font-family: Georgia;">Eleanor is super excited about having a baby brother come. She keeps talking about how she is going to change his diaper and teach him his letter, numbers, and on and on... It is quite funny to listen to.</span><br />
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<span style="color: magenta; font-family: Georgia;">Last but not least, Eleanor had a CF appointment at the end of July and she had gained three pounds and grown a few inches. Her culture came back normal so we are praising the Lord for such a good report. Keep her in your prayers as she continues to adjust to her new home and surroundings.</span><br />
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<span style="color: magenta; font-family: Georgia;">Thank you for your prayers,</span><br />
<span style="color: magenta; font-family: Georgia;">Coleen</span>The Guilfordshttp://www.blogger.com/profile/06724639221544789087noreply@blogger.com0tag:blogger.com,1999:blog-3240262137185809024.post-84310051128594899362011-07-05T23:10:00.000-05:002011-07-05T23:10:49.616-05:00It's been three months!So after three months of no blogging I thought I would let you know we are still here! I have not had an abundance of time lately to blog but wanted to update you on several things.<br />
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Eleanor is doing good. She has had a busy summer. We have gone to birthday parties, the pool, Gulf World, the beach, and spend the night parties. I think the last is her favorite one! She starts her round of TOBI tomorrow. Everyday she talkes about her little baby brother and what she is going to teach him! What she is going to teach him varies on what mood she is in but all of it is very funny!!<br />
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Speaking of her little brother he is due on October 14 and right now I am currently 25 weeks. His ultrasound for his growth back at 16 weeks showed everything was on track and looking good. We do have one glitch. For some reason I only have one artery and one vein in the umbilical cord. You are supposed to have two arteries. They say it can cause slow growth but he has always measured above average at every ultrasound. Please help us pray that this will continue to not be a problem and this little boy in my belly will be big and strong. We know the Lord has good things for him just like he has for Eleanor. My next appointment is July 19 and will have another ultrasound. I will update everyone then.<br />
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One more piece of exciting news! We raised over 51,000.00 at the Destin CF walk this year! Thank you for all of your support of not only Eleanor but of all of the kids and adults who suffer with this disease.<br />
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ColeenThe Guilfordshttp://www.blogger.com/profile/06724639221544789087noreply@blogger.com1tag:blogger.com,1999:blog-3240262137185809024.post-73542713481081670692011-04-07T20:39:00.000-05:002011-04-07T20:39:34.432-05:00Easter crafting with Eleanor<div class="separator" style="clear: both; text-align: center;"><a href="http://4.bp.blogspot.com/-_-AAvrDVE0U/TZ5llTou0CI/AAAAAAAAAGI/BVajPHXEF8w/s1600/P1000525.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" r6="true" src="http://4.bp.blogspot.com/-_-AAvrDVE0U/TZ5llTou0CI/AAAAAAAAAGI/BVajPHXEF8w/s320/P1000525.JPG" width="320" /></a></div><div style="text-align: center;"><span style="color: #741b47; font-family: "Trebuchet MS", sans-serif;">Easter crafts!</span></div><div style="text-align: center;"><br />
</div><div style="text-align: center;"><span style="color: #741b47; font-family: Trebuchet MS;">Today we went to our favorite craft store, Hobby Lobby, and hit the sales on Easter eggs. Tonight after supper Eleanor and I did some crafting. Eleanor told me what she wanted and mommy cut and hot glued! We have an Easter Cow, Bunny, Moose and Chick. I know that cows and moose do not really fit the theme but she was sure that was what she wanted to make! This is such a fun age. I love being able to craft with her like this. It adds another thing for us to look forward to! We even manage to get this in on TOBI nights like tonight. Like I have said before Eleanor has CF but it doesn't have her. We will never let CF define who she is or control what we do. I love that she received some of her mommy's genes and likes to make things. This is going to be fun!</span></div><div style="text-align: center;"><br />
</div><div style="text-align: center;"><span style="color: #741b47; font-family: Trebuchet MS;">Other news</span></div><div style="text-align: center;"><span style="color: #741b47; font-family: Trebuchet MS;">Tomorrow (april 8) we will be thirteen weeks! So excited everything has been going well. I just seem to have to pace myself because I tire out much faster than normal. Eleanor is cute and continues to talk about what she is going to "teach" the baby when it gets here! LOL! It will be a sight to behold.</span></div><div style="text-align: center;"><br />
</div><div style="text-align: center;"><span style="color: #741b47; font-family: Trebuchet MS;">Thank you for the prayers and continue praying for us it is felt daily!</span></div><div style="text-align: center;"><br />
</div><div style="text-align: center;"><span style="color: #741b47; font-family: Trebuchet MS;">Coleen, Robert, and Eleanor</span></div>The Guilfordshttp://www.blogger.com/profile/06724639221544789087noreply@blogger.com0tag:blogger.com,1999:blog-3240262137185809024.post-7117176927902097842011-03-31T15:41:00.000-05:002011-03-31T15:41:38.620-05:00Updates, News and stuff!<span style="color: #741b47; font-family: "Trebuchet MS", sans-serif;">Updates:</span><br />
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<span style="color: #741b47; font-family: Trebuchet MS;">We are still in the midst of doing our TOBI treatments. She is doing well most of the time. We are starting to encounter the I don't want to's. Right now we just change up her routine and let her paint or play with playdough while she is doing the TOBI. It seems to have worked as today she didn't want me to take the TOBI off because she wanted to continue to paint!</span><br />
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<span style="color: #741b47; font-family: Trebuchet MS;">She is now on Prevacid once a day for her reflux. This is a result of her bronch. Found out that she has very bad reflux. Interesting as she never seems to complain about it but who know that she is dealing with that she doesn't tell us. :) She is a strong little warrior.</span><br />
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<span style="color: #741b47; font-family: Trebuchet MS;">News:</span><br />
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<span style="color: #741b47; font-family: Trebuchet MS;">Robert and I went to the doctor yesterday and confirmed that we are pregnant!!</span><br />
<div class="separator" style="clear: both; text-align: center;"><a href="http://1.bp.blogspot.com/-YKBj9bSp2yA/TZTi71uAI9I/AAAAAAAAAGE/B_JBqfqj9z0/s1600/Scan001.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="274" r6="true" src="http://1.bp.blogspot.com/-YKBj9bSp2yA/TZTi71uAI9I/AAAAAAAAAGE/B_JBqfqj9z0/s320/Scan001.jpg" width="320" /></a></div><div class="separator" style="clear: both; text-align: left;"><span style="background-color: white; color: #741b47; font-family: "Trebuchet MS", sans-serif;">This is our baby #2. She/he measures at 3 inches and will be twelve weeks tomorrow (4/1)! We are due on 10/14/11. Isn't it amazing how meticulous God is?? What a precious sight it was seeing this little one kicking, stretching, and dancing around. The doctor says everything looks normal and healthy. "For you created my inmost being; you knit me together in my mother’s womb. ~Ps. 139:13</span></div><div class="separator" style="clear: both; text-align: left;"><br />
</div><div class="separator" style="clear: both; text-align: left;"><span style="background-color: white; color: #741b47; font-family: "Trebuchet MS", sans-serif;">It is not wonderful that you can see the profile of the little face the nose, lips, chin, forehead. The little legs. You cannot see the arms because the baby was moving so fast. We are very excited and would ask all of you to pray for a healthy baby and a smooth pregnancy.</span></div><br />
<span style="background-color: white; color: #741b47; font-family: "Trebuchet MS", sans-serif;">Eleanor doesn't quite understand. When we told her she was going to be a big sister she did a little dance and screamed, "Yeah!!" She told us that she can teach it numbers, letters, and to help it drink. I will update you with her other interesting insights as we get them.</span><br />
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<span style="background-color: white; color: #741b47; font-family: "Trebuchet MS", sans-serif;">CF Fundraising</span><br />
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<span style="color: #741b47; font-family: Trebuchet MS;">We are in the middle of our fundraising. I have tshirts for 15.00 and we have raffle tickets. If you would like to just make a donation please click on this link:</span><br />
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<a href="http://www.cff.org/Great_Strides/ColeenGuilford7495">http://www.cff.org/Great_Strides/ColeenGuilford7495</a> <br />
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<span style="background-color: white; color: #741b47; font-family: "Trebuchet MS", sans-serif;">Thanks!</span><br />
<span style="background-color: white; color: #741b47; font-family: "Trebuchet MS", sans-serif;">Coleen, Robert, and Eleanor</span><br />
<span style="background-color: white; color: #741b47; font-family: "Trebuchet MS", sans-serif;"> </span><span style="background-color: white; color: #741b47; font-family: "Trebuchet MS", sans-serif;"> </span> <br />
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</div>The Guilfordshttp://www.blogger.com/profile/06724639221544789087noreply@blogger.com0tag:blogger.com,1999:blog-3240262137185809024.post-29823934368792390342011-03-14T22:48:00.000-05:002011-03-14T22:48:05.077-05:00Bronch Results<span style="color: purple; font-family: Georgia, "Times New Roman", serif;">We received the Bronch results in several different batches so I have waited to post until we know all of them. The day of the bronch went well. Eleanor only had a little anxiety...mostly about seeing the guy who does her throat culture. She was very happy when we said that she would not be seeing him today. We saw our doctor and all the pre-op nurses. Eleanor even walked off with the anesthesiologist without even looking back. So before the procedure Eleanor did wonderfully. A wonderfully comforting thing happened right before she was taken down. The doctor came in and talked with us and said, "Do you mind if I pray?" "We would love that!", was our reply! How awesome...to know that the person whose hands she will be in wants to pray before the procedure...calm and peace were given to us from the Lord.</span><br />
<span style="color: purple; font-family: Georgia;">We waited about 30 minutes and the doctor came back up and said that she looked better than he expected. (Yeah!) He saw no signs of any problems and what secretions she did have; he sucked out.</span><br />
<span style="color: purple; font-family: Georgia;">Now we were led back to her room where she was waking up. This part did not go as well...the meds made her a little angry. She was not happy to have an IV in her foot. She tried to pull it out several times. Let's just say that when we left the hospital and finally got in the car we were wondering what child that was that woke up from the procedure. She did start acting normal when we got to the car and proceeded to talk and tell us she was hungry.</span><br />
<span style="color: purple; font-family: Georgia;">That afternoon she was on the couch playing with Bubs Ipad when she just up and fell asleep on me. THIS NEVER HAPPENS. We figured it was just the after effects from the procedure. Well, she got goosebumps all over her then proceeded to get hot...like on fire hot. We took her temp and it was over 102. So we called the doctor and were instructed to give her some tylenol to help. We could definitely tell when it kicked in. She was up and talking again like her normal self. The fever went away with the medicine and when she woke up the following morning she pronounced herself well!</span><br />
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<span style="color: purple; font-family: Georgia;">RESULTS</span><br />
<span style="color: purple; font-family: Georgia;">The results of the test were really good. Her first culture came back normal...this would have been the one to show if she had any pseudomonas. The second culture which would have told us if she was growing any fungus or mold came back normal! The third one which tells us if she had acid reflux came back positive. It measure 4+ which is on the high end. It is weird because we have never noticed it but then it was mentioned that it can cause a cough. Hmmm...wonder if that is what causes the unexplained cough sometimes.</span><br />
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<span style="color: purple; font-family: Georgia;">Her labs came back good except her Vitamin A level was low again. We will be taking an extra dose of the vitamin to help bump it up.</span><br />
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<span style="color: purple; font-family: Georgia;">Those are our results! Praise the Lord we received a good report. It could have been must worse. We are very thankful.</span><br />
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<span style="color: purple; font-family: Georgia;">Thank you for your prayers and support. We are already back on our 28 days of TOBI. She is handling it really well. She is such a trooper!</span><br />
<br />
<span style="color: purple; font-family: Georgia;">Coleen</span>The Guilfordshttp://www.blogger.com/profile/06724639221544789087noreply@blogger.com0tag:blogger.com,1999:blog-3240262137185809024.post-60191277376206030682011-02-17T15:49:00.001-06:002011-02-17T15:49:05.407-06:00Feb 2011 Beach<object name="Slideshow" id="Slideshow" width="425" height="425" align="middle" codebase="http://download.macromedia.com/pub/shockwave/cabs/flash/swflash.cab" classid="clsid:d27cdb6e-ae6d-11cf-96b8-444553540000"><param name="movie" value="http://www.shutterfly.com/flashapps/flashslideshow/Slideshow.swf" /><param name="flashvars" value="configurl=http%3A%2F%2Fcmd.shutterfly.com%2Fcommands%2Fpictures%2Fgetshareoutslideshowconfig%3Fsite%3Dguilfordfamilyphotos%26page%3Dguilfordfamilyphotos%26node%3D823" /><param name="allowscriptaccess" value="always" /><embed id="Slideshow" width="425" height="425" name="Slideshow" align="middle" quality="high" type="application/x-shockwave-flash" flashvars="configurl=http%3A%2F%2Fcmd.shutterfly.com%2Fcommands%2Fpictures%2Fgetshareoutslideshowconfig%3Fsite%3Dguilfordfamilyphotos%26page%3Dguilfordfamilyphotos%26node%3D823" pluginspage="http://www.adobe.com/go/getflashplayer" allowscriptaccess="always" allowfullscreen="true" bgcolor="#869ca7" src="http://www.shutterfly.com/flashapps/flashslideshow/Slideshow.swf"></embed></object><p style="width:425px;margin-top:0;text-align:center;"><a href="http://guilfordfamilyphotos.shutterfly.com/823?eid=115">Click here to view these pictures larger</a><img width="1" height="1" border="0" src="https://os.shutterfly.com/b/ss/sflyshareprod/1/H.15/111?pageName=sharekey&c1=pictures&c2=blogger" /></p>The Guilfordshttp://www.blogger.com/profile/06724639221544789087noreply@blogger.com0tag:blogger.com,1999:blog-3240262137185809024.post-17646511138596147982011-02-15T22:01:00.000-06:002011-02-15T22:01:59.053-06:00Pre-admin done!<span style="color: #741b47; font-family: Georgia, "Times New Roman", serif; font-size: x-small;">I have gone thru the pre-administration for Eleanor over the phone. It was funny talking with the lady and having to tell her about Eleanor's different meds and about her enzymes. It was a interesting conversation...I always forget when we go a while without having to have one of "those" conversations. I forget that not everyone knows what CF entails on a daily basis. Since it is just second nature to me as it is our life.</span><br />
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<span style="color: #741b47; font-family: Georgia, "Times New Roman", serif; font-size: x-small;">We have to be at the hospital at 6 am on Monday. Bright and early...this should be interesting! Eleanor will be fine until we see the hospital then she will probably start crying. I already warned the lady that she would not be happy to see them after her last experience getting an IV. She told me Eleanor would get some happy juice and should be fine. All I have to say is that I warned her! ;)</span><br />
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<span style="color: #741b47; font-family: Georgia, "Times New Roman", serif; font-size: x-small;">We are done with TOBI!! Finished up yesterday morning, so this morning we got to go for a stroll along 30A and see the water. I could smell the salt in the air which is a good benefit to her. She wanted to go play in the waves and sand. She was told to wait until it warms up. Although we might try to go on Thursday if it warms up to almost 70! </span><br />
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<span style="color: #741b47; font-family: Georgia, "Times New Roman", serif; font-size: x-small;">Keep her and us in your prayers. I will try to update the blog on Monday afternoon to tell you how it all went. </span><br />
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<span style="color: #741b47; font-family: Georgia, "Times New Roman", serif; font-size: x-small;">Coleen</span>The Guilfordshttp://www.blogger.com/profile/06724639221544789087noreply@blogger.com0tag:blogger.com,1999:blog-3240262137185809024.post-17339201860890347322011-02-09T15:50:00.000-06:002011-02-09T15:50:04.531-06:00T-shirts!!<div class="separator" style="clear: both; text-align: center;"><a href="http://4.bp.blogspot.com/_zAD6XvXaKQA/TVMKutkKw3I/AAAAAAAAAFw/CsGL16PDEd4/s1600/eleanors-extraveganza.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" h5="true" height="320" src="http://4.bp.blogspot.com/_zAD6XvXaKQA/TVMKutkKw3I/AAAAAAAAAFw/CsGL16PDEd4/s320/eleanors-extraveganza.jpg" width="319" /></a></div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;">Here is our T-shirt design for 2011!! We FELL IN LOVE with this design because it just embodies many things for us. Can't you just see Eleanor floating away with a big smile on her face?!? </div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;">Please let me know if you want a shirt. They are $15.00 each. They will be printed on white t-shirts. You can email me at <a href="mailto:r-cguilford@mchsi.com">r-cguilford@mchsi.com</a> let me know how many and what size you would like. </div><div class="separator" style="clear: both; text-align: center;">A big shout out to Andy Stein at who is printing the shirts for us. He has a little girl who has CF as well. Thank you!!</div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;">WE are doing well right now...still on TOBI but going to be off soon. Received a call today and Eleanor has been pre-registered for her "procedure" on the 21st. All is going well.</div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;">I will soon have a link to my CF page for those of you who would like to make a donation on behalf of Eleanor this year.</div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;">Thank you for all of your support!!<br />
Coleen, Robert, and Eleanor</div><div class="separator" style="clear: both; text-align: center;"><br />
</div>The Guilfordshttp://www.blogger.com/profile/06724639221544789087noreply@blogger.com0tag:blogger.com,1999:blog-3240262137185809024.post-52212540719141436422011-02-07T14:57:00.001-06:002011-02-07T15:01:35.910-06:00Date has been set...<div style="clear: left; cssfloat: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img height="209" id="il_fi" src="http://isbor.org/wp-content/uploads/2010/06/Hospital.jpg" style="padding-bottom: 8px; padding-right: 8px; padding-top: 8px;" width="224" /></div><br />
<span style="color: #a64d79; font-family: Georgia, "Times New Roman", serif;">We have set a date for Eleanor's bronch. It will be President's day. She will not be told about it until right before. I know this seems bad to some of you but she still cries at the thought of visiting the doctor's office. Now, mind you, she is a big girl and the tears stop after we tell her what they are going to do. She recites listen to my chest, to my ears, show them my teeth, and then we will be all done!! Most of the time this is what happens and thankfully we have not had any shots during our last few doctor's visits.</span><br />
<br />
<span style="color: #a64d79; font-family: Georgia, "Times New Roman", serif;">However, this time I cannot tell her that. She will have to get another IV (if you recall last time they did this she "spilled" all over the nurse). I have trust and FAITH in God that all will go well, but I simply cannot tell her about it now and have her tear up everytime we talk about it. She is just so smart and has such a great memory. </span><br />
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<span style="color: #a64d79; font-family: Georgia;">We have to check in at 6:30 am and the outpatient procedure will begin at around 8:00 am. She will be asleep for this procedure. </span><span style="color: #a64d79; font-family: Georgia;">Most people with CF call it a "bronch" but medically it is called a bronchoscopy. Now some of you are going to be tempted to google it to see what it is, that is fine. <strong>Do know that there are all different types of opinions and articles that can be misleading on the internet. </strong></span><br />
<span style="color: #a64d79; font-family: Georgia;">Basically, they are going to thread a scope either thru her mouth or nose into her lungs to look at them. They will be able to see how much mucous she has in there, how her actual lungs look and to take a sample of her mucous from her lungs that will be more accurate than the throat cultures she gets every quarter. ( those are about 70% accurate) It will give us a good reading about how we stand.</span><br />
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<span style="color: #a64d79; font-family: Georgia;">Please pray for Eleanor and for her wonderful CF doctor that will be performing the procedure. It is an outpatient procedure so she will not be staying the night. We will get to come home afterwards. </span><br />
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<span style="color: #a64d79; font-family: Georgia;">We are still on her TOBI and will end right around Valentine's day. Bless her, she has been a little trooper. She got to play with some friends last night and she is worn out today! At least it is in a good way.</span><br />
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<span style="color: #a64d79; font-family: Georgia;">More later,</span><br />
<span style="color: #a64d79; font-family: Georgia;">Coleen</span>The Guilfordshttp://www.blogger.com/profile/06724639221544789087noreply@blogger.com0tag:blogger.com,1999:blog-3240262137185809024.post-28014531831796791542011-02-04T17:35:00.001-06:002011-02-04T17:35:21.605-06:00Eleanor's birthday<object name="Slideshow" id="Slideshow" width="425" height="425" align="middle" codebase="http://download.macromedia.com/pub/shockwave/cabs/flash/swflash.cab" classid="clsid:d27cdb6e-ae6d-11cf-96b8-444553540000"><param name="movie" value="http://www.shutterfly.com/flashapps/flashslideshow/Slideshow.swf" /><param name="flashvars" value="configurl=http%3A%2F%2Fcmd.shutterfly.com%2Fcommands%2Fpictures%2Fgetshareoutslideshowconfig%3Fsite%3Dguilfordfamilyphotos%26page%3Dguilfordfamilyphotos%26node%3D666" /><param name="allowscriptaccess" value="always" /><embed id="Slideshow" width="425" height="425" name="Slideshow" align="middle" quality="high" type="application/x-shockwave-flash" flashvars="configurl=http%3A%2F%2Fcmd.shutterfly.com%2Fcommands%2Fpictures%2Fgetshareoutslideshowconfig%3Fsite%3Dguilfordfamilyphotos%26page%3Dguilfordfamilyphotos%26node%3D666" pluginspage="http://www.adobe.com/go/getflashplayer" allowscriptaccess="always" allowfullscreen="true" bgcolor="#869ca7" src="http://www.shutterfly.com/flashapps/flashslideshow/Slideshow.swf"></embed></object><p style="width:425px;margin-top:0;text-align:center;"><a href="http://guilfordfamilyphotos.shutterfly.com/666?eid=115">Click here to view these pictures larger</a><img width="1" height="1" border="0" src="https://os.shutterfly.com/b/ss/sflyshareprod/1/H.15/111?pageName=sharekey&c1=pictures&c2=blogger" /></p>The Guilfordshttp://www.blogger.com/profile/06724639221544789087noreply@blogger.com0tag:blogger.com,1999:blog-3240262137185809024.post-17906961453968053852011-02-04T16:32:00.000-06:002011-02-04T16:32:17.040-06:00Birthday!!!!<span style="color: #a64d79; font-family: Georgia, "Times New Roman", serif;"><em>Happy Birthday to Eleanor!!</em></span><br />
<br />
<em><span style="color: #a64d79; font-family: Georgia;">Wow my baby turned three! It is really hard to believe that she is three...really hard. Last year at this time we were in the hospital for Eleanor's first PICC line and IV meds. So, um, we were just a LITTLE happy to be planning a party and not be in the hospital. We did come close to going in this year but thankfully for now we are just on TOBI.</span></em><br />
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<em><span style="color: #a64d79; font-family: Georgia;">Eleanor's birthday ended up being more of a weekend then a day...we celebrated Friday, Saturday and Sunday. It was lind of like two birthday's in one for her. To say she had a blast would be an understatement. Friday we celebrated with family. Aunt Becky and Joshua and Camille, cousins, from Auburn came down to celebrate with her. Nanny and Bubs helped celebrate as well. We opened family presents (Robert and I decided we probably got too many presents. Then we decided it didn't matter because last year she was in the hospital)</span></em><br />
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<em><span style="color: #a64d79; font-family: Georgia;">Saturday Aunt Ashley and Uncle Stuart came down from Troy with her cousins, Brody and Lauren. Unfortunately, Grami and Pawpaw did not get to come because he was in the hospital having tests done. :( They were missed...please keep them in your prayers.</span></em><br />
<em><span style="color: #a64d79; font-family: Georgia;">Her friends came over and we had pizza (requested by the birthday girl) and cake (picked out by the birthday girl). Then we opened presents. </span></em><br />
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<em><span style="color: #a64d79; font-family: Georgia;">Now it was off to Build-a-bear to have a party their. They all had a blast!! I think everyone was excited about it and left with a new friend!!</span></em><br />
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<em><span style="color: #a64d79; font-family: Georgia;">I am in the process of uploading pictures right now. When I get them up I will post the link. </span></em><br />
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<em><span style="color: #a64d79; font-family: Georgia;">We are extremely thankful to all of the people out keep us in their prayers even when we are "well." We learned that things can and usually do happen quickly with CF. Keep her in your prayers as we will have a procedure called bronch soon.</span></em><br />
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<em><span style="color: #a64d79; font-family: Georgia;">Other things...</span></em><br />
<em><span style="color: #a64d79; font-family: Georgia;"> She is learning bible verses and has been quite cute with them. We are on our third verse and she is reciting them very well. So proud...we want her to have these written upon her heart at an early age so she can recall them when she gets older with no problem.</span></em><br />
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<em><span style="color: #a64d79; font-family: Georgia;">Sorry for the long blog...but thanks for reading!</span></em><br />
<em><span style="color: #a64d79; font-family: Georgia;">Coleen</span></em>The Guilfordshttp://www.blogger.com/profile/06724639221544789087noreply@blogger.com0tag:blogger.com,1999:blog-3240262137185809024.post-20624469474053326152011-01-19T14:55:00.000-06:002011-01-19T14:55:07.358-06:00Doctor's appointments and Birthday<span style="color: #a64d79; font-family: "Trebuchet MS", sans-serif;"><em>Here's our update:</em></span><br />
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<em><span style="color: #a64d79; font-family: "Trebuchet MS", sans-serif;">I went to the doctor on Saturday and after a chest x-ray and a flu test (doctor's tend to freak out when you mention your child has CF, its comical, to me) I was diagnosed with acute bronchitis...joy! I have never coughed so much in my life but I would not complain since my little girl coughs all the time and keeps a beautiful smile on her face. I am happy to report with the new antibiotic that I am feeling 100% better and sounding about 75% better. ;)</span></em><br />
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<em><span style="color: #a64d79; font-family: "Trebuchet MS", sans-serif;">Eleanor went to the doctor on Monday. We went in hoping we were not going to have to go into the hospital. You see, she has been coughing for no reason and that is not normal or good for her. She did really good. She weighed in at 29.9 lbs and was 35.7 inches tall. She is continuing to increase in weight and height but it was just not a huge jump like before. She let the doctor (this is a new CF doctor to us...she likes him) listen to her chest and "tickle" her ears. She did keep asking when it was time to go...she always likes that part the best.</span></em><br />
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<em><span style="color: #a64d79; font-family: "Trebuchet MS", sans-serif;">I can't remember if I posted this or not but we were taken off TOBI because we had no psuedomonas cultures three times. This was GREAT! But not really...let me explain...we know that psuedomonas is going to be her battle and have accepted it. So when we were negative we were excited but when we were taken off of TOBI we were concerned. She had not been sick in almost a year and we felt that main reason was the on/off TOBI for 28 days. We had no TOBI for November and December. Mid-December Eleanor starts a snotty nose and congestion. No problem, right! Get Cipro in her and she gets better. Cipro is out of her system and now we have a snotty nose and cough. YUCK! </span></em><br />
<em><span style="color: #a64d79; font-family: "Trebuchet MS", sans-serif;">Did I mention that December would have been the ON TOBI month???</span></em><br />
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<em><span style="color: #a64d79; font-family: "Trebuchet MS", sans-serif;">Are you wondering where I am going with this... Here it is....</span></em><br />
<em><span style="color: #a64d79; font-family: "Trebuchet MS", sans-serif;">We were hoping the doctor would be willing to let us try the TOBI again before that hospital visit had to occur. GUESS WHAT? He did...I know we are quite weird to want another treatment for our daughter but the record, for her, has shown TOBI works. </span></em><br />
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<em><span style="color: #a64d79; font-family: "Trebuchet MS", sans-serif;">So we are on TOBI again. YEAH!! She is still coughing but seems to be doing better. After the TOBI we are going to go in and have a procedure called a Bronch done. More on that later...</span></em><br />
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<em><span style="color: #a64d79; font-family: "Trebuchet MS", sans-serif;">Please pray that the TOBI helps whatever is wrong with her and that the upcoming procedure goes smoothly. </span></em><br />
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<em><span style="color: #a64d79; font-family: Trebuchet MS;">BIrthday</span></em><br />
<em><span style="color: #a64d79; font-family: Trebuchet MS;">ELeanor's birthday is the 28th of the month and she is sooo very excited about it...I will keep you updated on the party and what my two year old almost three year old has to say about it. :)</span></em><br />
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<em><span style="color: #a64d79; font-family: "Trebuchet MS", sans-serif;">Your prayers, as always, are felt on a daily basis and truly appreciated!</span></em><br />
<em><span style="color: #a64d79; font-family: "Trebuchet MS", sans-serif;">Coleen, Robert, and Eleanor</span></em>The Guilfordshttp://www.blogger.com/profile/06724639221544789087noreply@blogger.com0tag:blogger.com,1999:blog-3240262137185809024.post-58395508726845621672011-01-14T15:15:00.000-06:002011-01-14T15:15:12.552-06:00New Year NewsHey,<br />
<br />
We have been very busy around the Guilford house. We had a great Christmas and New Years's. Even though all three of us were sick and on antibiotics the week of Christmas. This was Eleanor's first year where she knew exactly what was going on at Christmas. We left Santa cookies and milk the night before and sang Happy Birthday to Jesus on Christmas.<br />
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Eleanor's cold didn't really go away when her Cipro was over...so we have a doctor's appointment on Monday to see what is going on. We did do a culture that came back ok but she is coughing and sleeping A LOT...which is good in some ways and bad in others. Those are two classic signs (for her) that she has psuedomonas. Prayers that we will be able to figure out what is wrong with her.<br />
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I still have my cold that will not seem to go away. I now have a very annoying cough that will not go away it was kind of made worse by our trip to Glendale to see the Auburn Tigers win a National Championship!! I yelled a little too much. (OOPS!) Now I have a bad cough and cold...<br />
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Will upload some pictures of our adventures in Arizona and our Christmas. <br />
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Eleanor did enjoy some grandparent time while we were in Arizona...I think everyone had a fantastic time!<br />
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Prayers for Eleanor's appointment on Monday and that my cold will get better. <br />
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We are fixing to ramp up for the Great Strides walk season soon...will have more on it later.<br />
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WAR EAGLE!!<br />
ColeenThe Guilfordshttp://www.blogger.com/profile/06724639221544789087noreply@blogger.com0tag:blogger.com,1999:blog-3240262137185809024.post-19761104012489894752010-12-09T11:40:00.000-06:002010-12-09T11:40:52.807-06:00Christmas cookie pictures<a href="http://www.guilfordfamilyphotos.shutterfly.com/"><span style="color: #38761d;">www.guilfordfamilyphotos.shutterfly.com</span></a><span style="color: #38761d;"> <em> I have uploaded her Christmas cookie pictures. She was quite funny doing it.</em></span><br />
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<span style="color: #38761d;"><em>Coleen</em></span>The Guilfordshttp://www.blogger.com/profile/06724639221544789087noreply@blogger.com0tag:blogger.com,1999:blog-3240262137185809024.post-64046864640419507112010-12-08T15:47:00.000-06:002010-12-08T15:47:21.659-06:00'Tis the Season of CHRISTmas...<img height="166" id="il_fi" src="http://farm1.static.flickr.com/155/382249792_45145d59ea.jpg" style="padding-bottom: 8px; padding-right: 8px; padding-top: 8px;" width="208" /><br />
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<span style="color: #38761d;">I have so many things to update you on... WARNING IT IS GOING TO BE LONG!</span><br />
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<span style="color: #38761d;">First...we lost another member of my family the day after Thanksgiving. My dad's mother passed away literally almost a month to the day of my mom's mother. What a tremedous season of loss this has been in our family. The encouraging news this that one day we will get to see them again one day in Heaven and I look forward to that day. This comforts me more than any of you could know.</span><br />
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<div class="separator" style="clear: both; text-align: center;"><a href="http://3.bp.blogspot.com/_zAD6XvXaKQA/TP_4lpSrjNI/AAAAAAAAAFQ/xQ5WZe9KMyw/s1600/P1000358.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="150" n4="true" src="http://3.bp.blogspot.com/_zAD6XvXaKQA/TP_4lpSrjNI/AAAAAAAAAFQ/xQ5WZe9KMyw/s200/P1000358.JPG" width="200" /></a></div><br />
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<div class="separator" style="clear: both; text-align: center;"><br />
</div><span style="color: #38761d;">Second....</span><br />
<span style="color: #38761d;">Eleanor went to the Georgia vs Auburn game and had a blast. This would be the first time in her 2.75 years that I skipped her nap ( I am a schedule person!!). The game started at 2:30 as most of you know... we were not sure how this would go...</span><br />
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<span style="color: #38761d;">She could not have done better she was a doll during the ENTIRE game. She colored and read books with all of our help. (Nanny, Aunt Debbie, Jacob, Jessica and Uncle Scott) We thought we might have to take her to see Bubs and the Ipad at half but she did just great. She was good on the way home as well. Didn't get to bed until 9:45 and had been awake for well over twelve hours. It was a blessing!!</span><br />
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<span style="color: #38761d;">Thanksgiving has come and gone...I want to tell you that I am thankful for my entire family and for my support group that I have. The year would have been really bad without them. Thank you all who pray for Eleanor on a daily basis. Please keep those prayers coming we feel them.</span><br />
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<span style="color: #38761d;">Since it is the Christmas season Robert and I have read the story of Jesus' birth to Eleanor so we can start from the beginining of her life to know that Christmas is about Jesus. She has been quite cute. She is constantly wanting to know when she gets to see him? Can I go to the birthday party for Jesus? (Yes we will be having a birthday cake for Jesus on Christmas.) The greatest one is: Are we following God? She is truly remarkable and reminds me daily of our walk with Him.</span><br />
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<span style="color: #38761d;">She is, however, very excited about her visit from Santa. At Thanksgiving she was thankful for Santa, Jesus and her family.</span><br />
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<span style="color: #38761d;">Last night we make cookies. She decorated them and also helped me cut them out with the cookies cutters. I will upload those pictures and link them so you can see her at work.</span><br />
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<span style="color: #38761d;">Finally, we went to the doctor mid-November and she weighed 29 lbs. and was a little over 35 inches tall. She gained a pound but grew so the doctor was pleased. The greatest news of all was that she doesn't have Psuedomonas any more!! No more TOBI for now... we are so very thankful to get a break. Hopefully it will stay away for a while until then we are going to enjoy our break.</span><br />
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<span style="color: #38761d;">Remember why we celebrate CHRISTmas... it is called CHRISTmas for a reason.</span><br />
<span style="color: #38761d;">Coleen OH and by the way </span><span style="color: #e69138; font-size: large;">WAR EAGLE!!!</span>The Guilfordshttp://www.blogger.com/profile/06724639221544789087noreply@blogger.com0tag:blogger.com,1999:blog-3240262137185809024.post-33745746604929445252010-11-05T22:32:00.000-05:002010-11-05T22:32:37.831-05:00Updates...<em><span style="color: #783f04; font-family: Georgia, "Times New Roman", serif;">October Updates</span></em><br />
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<em><span style="color: #783f04; font-family: Georgia, "Times New Roman", serif;">Where to start...it has been a hard month. We lost two more family members in October. Robert's Aunt and my grandmother passed this month. This world lost two good Christian ladies. However, they are no longer suffering and are with Jesus. We rejoice for them! </span></em><br />
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<em><span style="color: #783f04; font-family: Georgia;">Eleanor was on TOBI this month and it was a hard TOBI cycle this time. It started off rough with a cough after only a day and a half and the cough is still with us. It also seems to have sapped some of her energy. If you didn't know her you would probably think I was crazy but she is more run down after this cycle. I am happy that it is doing its job but am ready for a cure so we do not have to do this....</span></em><br />
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<em><span style="color: #783f04; font-family: Georgia;">We went to the pumpkin patch in Niceville at the UMC. Eleanor had a blast!</span></em><br />
<div class="separator" style="clear: both; text-align: center;"><a href="http://3.bp.blogspot.com/_zAD6XvXaKQA/TNTGMZzzwsI/AAAAAAAAAFM/_7aQf55v8aY/s1600/PA202449.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" px="true" src="http://3.bp.blogspot.com/_zAD6XvXaKQA/TNTGMZzzwsI/AAAAAAAAAFM/_7aQf55v8aY/s320/PA202449.JPG" width="213" /></a></div><br />
<em><span style="color: #783f04; font-family: Georgia, "Times New Roman", serif;">She was smiling really good in this picture. She also went to the Peanut Festival with her Daddy, Nanny, Bubs, and cousins. I have uploaded these pictures on my share site. <a href="http://guilfordfamilyphotos.shutterfly.com/">http://guilfordfamilyphotos.shutterfly.com/</a></span></em><br />
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<em><span style="color: #783f04; font-family: Georgia;">We also added a hamster named Cassie to our family. She is a black bear hamster and Eleanor loves "to take care of her." She does not get to play with her a lot right now as Cassie is a baby hamster but as she grows it is going to be an interesting journey.</span></em><br />
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<em><span style="color: #783f04; font-family: Georgia;">CF NEWS</span></em><br />
<em><span style="color: #783f04; font-family: Georgia;">The Clinical trial for the combo of the two drugs to cure the DF 508 gene has started. If successful this could be it!! To say we are excited is a HUGE understatement! :) Please pray that these trials are successful and that the FDA will approve the drug after the trial is complete. I will definately be keeping everyone updated on this trial.</span></em><br />
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<em><span style="color: #783f04; font-family: Georgia;">We go to our CF clinic visit on Nov 16th. We are praying for a smooth visit as they are always stressful on Eleanor...</span></em><br />
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<em><span style="color: #783f04; font-family: Georgia;">Eleanor Moments</span></em><br />
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<em><span style="color: #783f04; font-family: Georgia;">There have been soooo many I can't list them all but here are a few highlights.</span></em><br />
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<em><span style="font-family: Georgia;"><span style="color: #783f04;">While I was gone to my grandmother's funeral in Ohio, Nanny and Bubs came down to keep Eleanor while Robert went to work. Robert called his mom to hear hysterical laughter on the other end. Bubs was on his hands and knees trying to open the magnetic door to our entertainment center so he could turn on the sound system. After the laughter stopped he heard Eleanor say to Bubs, "Let me help you Bubs!" Robert proceeded to tell his mother how to get it open...only to hear mid-conversation..."See that's what I am talking about!" Eleanor had opened the door for her Bubs. It was quite funny. :)</span></span></em><br />
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<em><span style="font-family: Georgia;"><span style="color: #783f04;">She has this habit of just laughing not fake laughing but infectious, belly laughing...</span></span></em><br />
<em><span style="font-family: Georgia;"><span style="color: #783f04;">We were on the way home from the ice cream store (we went since she had a good day potty training) and Robert and I were talking in the front seat. All of the sudden we heard laughter from the back seat. We still have no idea what caused it...maybe it was just between her and God. It only took about fifteen seconds before we were all laughing so hard we were all crying...those are the moments that no money can buy!</span></span></em><br />
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<em><span style="font-family: Georgia;"><span style="color: #783f04;">She also loves to sing, she will break out singing all the time...her new favorite is No More Monkeys Jumping on the bed. But we were singing Jesus Love Me and she said, "I love Jesus!" Then she wanted to see Him. So we talked about Jesus and how he can come into our hearts...you could see those wheels turning. Later that day she looked at me out of the blue and said, " Jesus is in your heart (pointing to my heart) and in my heart (pointing to her heart)." </span></span></em><br />
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<em><span style="font-family: Georgia;"><span style="color: #783f04;">Not sure it gets any better than that!</span></span></em><br />
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<em><span style="font-family: Georgia;"><span style="color: #783f04;">Pray for my family and my extended family in our season of loss. Pray for Eleanor that she continues to grow not only physically but spiritually.</span></span></em><br />
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<em><span style="font-family: Georgia;"><span style="color: #783f04;">Thanks,<br />
Coleen</span></span></em>The Guilfordshttp://www.blogger.com/profile/06724639221544789087noreply@blogger.com0tag:blogger.com,1999:blog-3240262137185809024.post-35724630133339755822010-10-20T23:12:00.000-05:002010-10-20T23:12:46.740-05:00Pumpkin patch and TOBIToday we went to a pumpkin patch with our some of our friends. Eleanor had a blast! I will upload some pictures so you can see the joy on her face. We have been busy lately going to football games, and other events so I have not had much time to blog. <br />
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We have been on our TOBI and it seems to be effecting her more this time than last time. She wakes up with a raspy voice in the morning and seems to be coughing more. It is a good and bad thing for me. This is what the TOBI is supposed to be doing but in the back my mind I keep thinking did she have something? Did I miss it? <br />
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She is so active now and we are finally able to get back outside so we have definately been exposed to more germs but we cannot live in a bubble. I cannot keep her locked inside either. To see the joy she experiences when we go to the park and play with her friends or just go outside to swing. Words cannot describe it. So, I am telling myself if she did have something the TOBI is just doing its job and getting rid of it.<br />
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I will try to post the pictures of the pumpkin patch tomorrow.<br />
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ColeenThe Guilfordshttp://www.blogger.com/profile/06724639221544789087noreply@blogger.com0