Easter crafting with Eleanor

Easter crafts!

Today we went to our favorite craft store, Hobby Lobby, and hit the sales on Easter eggs.  Tonight after supper Eleanor and I did some crafting.  Eleanor told me what she wanted and mommy cut and hot glued!  We have an Easter Cow, Bunny, Moose and Chick.  I know that cows and moose do not really fit the theme but she was sure that was what she wanted to make!  This is such a fun age.  I love being able to craft with her like this.  It adds another thing for us to look forward to!  We even manage to get this in on TOBI nights like tonight.  Like I have said before Eleanor has CF but it doesn't have her.  We will never let CF define who she is or control what we do.  I love that she received some of her mommy's genes and likes to make things.  This is going to be fun!

Other news

Tomorrow (april 8) we will be thirteen weeks!  So excited everything has been going well.  I just seem to have to pace myself because I tire out much faster than normal. Eleanor is cute and continues to talk about what she is going to "teach" the baby when it gets here!  LOL!  It will be a sight to behold.

Thank you for the prayers and continue praying for us it is felt daily!

Coleen, Robert, and Eleanor

Updates, News and stuff!

Updates:

We are still in the midst of doing our TOBI treatments.  She is doing well most of the time.  We are starting to encounter the I don't want to's.  Right now we just change up her routine and let her paint or play with playdough while she is doing the TOBI.  It seems to have worked as today she didn't want me to take the TOBI off because she wanted to continue to paint!

She is now on Prevacid once a day for her reflux.  This is a result of her bronch.  Found out that she has very bad reflux.  Interesting as she never seems to complain about it but who know that she is dealing with that she doesn't tell us. :)  She is a strong little warrior.

News:

Robert and I went to the doctor yesterday and confirmed that we are pregnant!!

This is our baby #2.  She/he measures at 3 inches and will be twelve weeks tomorrow (4/1)!  We are due on 10/14/11.  Isn't it amazing how meticulous God is??  What a precious sight it was seeing this little one kicking, stretching, and dancing around.  The doctor says everything looks normal and healthy.  "For you created my inmost being; you knit me together in my mother’s womb. ~Ps. 139:13

It is not wonderful that you can see the profile of the little face the nose, lips, chin, forehead.  The little legs.  You cannot see the arms because the baby was moving so fast.  We are very excited and would ask all of you to pray for a healthy baby and a smooth pregnancy.

Eleanor doesn't quite understand.  When we told her she was going to be a big sister she did a little dance and screamed, "Yeah!!"  She told us that she can teach it numbers, letters, and to help it drink.  I will update you with her other interesting insights as we get them.

CF Fundraising

We are in the middle of our fundraising.  I have tshirts for 15.00 and we have raffle tickets.  If you would like to just make a donation please click on this link:

http://www.cff.org/Great_Strides/ColeenGuilford7495

Thanks!
Coleen, Robert, and Eleanor
  

Pre-admin done!

I have gone thru the pre-administration for Eleanor over the phone.  It was funny talking with the lady and having to tell her about Eleanor's different meds and about her enzymes.  It was a interesting conversation...I always forget when we go a while without having to have one of "those" conversations.  I forget that not everyone knows what CF entails on a daily basis.  Since it is just second nature to me as it is our life.

We have to be at the hospital at 6 am on Monday.  Bright and early...this should be interesting!  Eleanor will be fine until we see the hospital then she will probably start crying.  I already warned the lady that she would not be happy to see them after her last experience getting an IV.  She told me Eleanor would get some happy juice and should be fine.  All I have to say is that I warned her! ;)

We are done with TOBI!!  Finished up yesterday morning, so this morning we got to go for a stroll along 30A and see the water.  I could smell the salt in the air which is a good benefit to her.  She wanted to go play in the waves and sand.  She was told to wait until it warms up.  Although we might try to go on Thursday if it warms up to almost 70! 

Keep her and us in your prayers.  I will try to update the blog on Monday afternoon to tell you how it all went. 

Coleen

Updates and NEWS!

I have not kept my blog up like I should lately.  Sorry about that!  I am going to do better...

TOBI

We are doing quite well with Eleanor's TOBI but her cough is absolutely horrible!  We were in O'Charley's the other day and she coughed (well one of many times) and the people who had just been placed next to us asked to move.  Like they were going to "catch" what she had.  THE NERVE of some people!  Since we have decided that CF is not going to be our identity I did not get up and tell the man that I was 100% sure that my daughter would not get him sick.  Robert handles these situations better than me...I was steamed for about five minutes and then decided not to let him ruin my meal.  I guess my point is that I understand people are still probably concerned about the H1N1 virus and all but if you have ever heard Eleanor or any CFer cough you know that it does not sound like a normal cough.  :)

Moving on...
Grami and Pawpaw came down visit this week and we went out to eat twice yesterday.  Eleanor asked to go to get cheese dip and tomatoes when they first got here.  (it was almost lunch time)  She loves to eat her cheese dip, chips, a whole cup of tomatoes, and taco meat.  The lady at the restaurant remembered us from last time and personally asked Eleanor what she wanted.  Eleanor told her Cheese dip, tomatoes, and taco meat!  We were eating our meal and the lady came back by and Eleanor decided she would share a tomato with her.  The lady took the tomatoes from Eleanor's little hand and told her thank you.  Then she ate it!  She did this twice.  As you can tell Eleanor did not take after her parents...she does not meet strangers!

Last night we ate out at Carrabba's and at the end of our meal when we were about to leave our waitress came up to the table and told us bye.  Eleanor said, "Bye!"  Then looked at the waitress and said, "I want to give you a hug!"  I wish I had a picture of the waitress' face...it was priceless...she was not quite sure if Eleanor really meant it.  So she asked Eleanor, "Do you want me to come give you a hug?"  Eleanor responded, "Yes!"  So the waitress came around the table and gave Eleanor a big hug.  Eleanor then said, "Thanks!"  The love of the Lord certainly shines through this little 2.5 year old.  There is no other way to explain it!  The power of the hug that she gave that waitress was tremendous.  We left the waitress with the biggest smile she had on her face all night!

IN OTHER NEWS!

In other news, part of the reason I have not been posting so much is because I have been soooo tired lately.  I would just crash when Eleanor would go down for her nap.  Some of you probably already have it figured out. Eleanor is going to be a BIG Sister on April 19, 2011!  We thought we were 8 weeks but after the appointment today we found out that we are actually 6.5 weeks along.  The doctor was please with the way the baby looked on the ultrasound.  We go to see her again in two weeks to make sure we are still progressing along like we should.  We didn't tell everyone until 8 weeks with Eleanor but we decided to go ahead and tell people now. 

Please pray for the baby that the Lord would put his hand on this baby the same way he covered and protected Eleanor while she was in me.  I know I will feel better after the first trimester is over.  We covet your prayers and will share updates as we get them.

Thanks!

Coleen