I called this morning and Eleanor cultured Staph. Ugh! This is the first time she has cultured it. The nurse knowing my tendancy to freak out told me to not worry! :) I know, right! She is right thought it does me no good to worry. The cipro the doctor prescribed for Eleanor will take care of the Staph in her lungs so we are good! I pray this helps her lungs to feel better. Keep praying for her...she had a really good day as far as attitude and eating today. I could feel the prayers! I cannot tell you how much it means to me to know we are constantly wrapped in prayer. It makes me smile!
Eleanor ate such a good lunch today at Simple Simon's Pizza in Dothan. I was ready to go and she said, "Wait mommy! I want another piece of pizza!" Boy was that music to my ears!
We should start the Cipro tomorrow. Please pray it kills all the bad stuff and doesn't cause any tummy troubles.
Coleen
Showing posts with label sputnum culture. Show all posts
Showing posts with label sputnum culture. Show all posts
Tuesday, March 13, 2012
Thursday, March 8, 2012
Eleanor's latest CF Visit
We just got back from our day long journey to Pensacola to see the CF doctor. It is always an adventure when we go to Pensacola. Especially now that we have Thomas, who is now five months, to go along for a whole day confined to either a car seat or a stroller. Today Grami and Pawpaw went with us and helped make the trip so much better!
Some background: Eleanor has had a on and off stuffy nose and just in the last week a crappy sounding cough. She also has started having a hard time dealing with certain things...mostly because lack of sleep and today we found out another reason.
So the great news is that we gained 1.3 pounds since December. I think that I can speak for Robert and I both when I say, "YEAH!!!!" We have worked extra hard to get some weight on her. She knows the routine when we check in and she gets her vitals done. The Respiratory tech tried to get her to blow in the macine that will measure her PFTs but she said she was scared. I knew something was off when she said that. So one of my prayer request is to pray that at our next visit she steps up and blows in the machine. I know she can do it! Last time she did very good with getting her culture and this time she freaked out a little bit but we did get it done.
She then saw the doctor and we talked about several things. One thing being that the flu is going around Hartford so I asked about going to church. You see we do not live in a bubble with Eleanor but we also try to make sure to keep her out of "for sure" bad situations. I hope that makes sense. She has her flu shot but since the flu is prevelant the doctor said we might take a break for a week or two from church to let it run its course. I hate this because she loves going, but I know it is best for her right now.
Another thing we talked about was Eleanor's cough. It is a yucky cough and after listening to her the doctor said she heard the dreaded crackling in the lungs. So we are on an extra one or two vest treatments with her xopenex. Doc went ahead and prescribed Cipro for 21 days. We hope this clears the crud out!! So pray she can maintain a good attitude with all of the extra stuff. She has done good since her other new treatments we added last time, but lately she has been a bit off in her attitude. Pray that this medicine helps clear her lungs and helps get her back to the peppy Eleanor we know.
We go back April 19th as a follow up appointment to see how she is doing. We appreciate all of our prayer warriors.
We get our culture back on Monday...will try to update that next week.
Coleen
Some background: Eleanor has had a on and off stuffy nose and just in the last week a crappy sounding cough. She also has started having a hard time dealing with certain things...mostly because lack of sleep and today we found out another reason.
So the great news is that we gained 1.3 pounds since December. I think that I can speak for Robert and I both when I say, "YEAH!!!!" We have worked extra hard to get some weight on her. She knows the routine when we check in and she gets her vitals done. The Respiratory tech tried to get her to blow in the macine that will measure her PFTs but she said she was scared. I knew something was off when she said that. So one of my prayer request is to pray that at our next visit she steps up and blows in the machine. I know she can do it! Last time she did very good with getting her culture and this time she freaked out a little bit but we did get it done.
She then saw the doctor and we talked about several things. One thing being that the flu is going around Hartford so I asked about going to church. You see we do not live in a bubble with Eleanor but we also try to make sure to keep her out of "for sure" bad situations. I hope that makes sense. She has her flu shot but since the flu is prevelant the doctor said we might take a break for a week or two from church to let it run its course. I hate this because she loves going, but I know it is best for her right now.
Another thing we talked about was Eleanor's cough. It is a yucky cough and after listening to her the doctor said she heard the dreaded crackling in the lungs. So we are on an extra one or two vest treatments with her xopenex. Doc went ahead and prescribed Cipro for 21 days. We hope this clears the crud out!! So pray she can maintain a good attitude with all of the extra stuff. She has done good since her other new treatments we added last time, but lately she has been a bit off in her attitude. Pray that this medicine helps clear her lungs and helps get her back to the peppy Eleanor we know.
We go back April 19th as a follow up appointment to see how she is doing. We appreciate all of our prayer warriors.
We get our culture back on Monday...will try to update that next week.
Coleen
Friday, January 20, 2012
Birth Announcement...to 3.5 months old~~
Hey,
I know I am behind...most of you know by now that Thomas Harold Guilford arrived on October 7, 2011! He is precious and looks like he is going to have red hair like his Eleanor! He arrived via C-section, after a day of being induced, at 11:00 pm. It was a special day as it was my grandmother's birthday and his middle name was her husbands first name. :)
Thomas is growing like a weed and he has a VERY PROUD Big Sis! Eleanor loves him so much! She wanted to wear her big sis shirt everyday after he was born! I am also happy to announce that Thomas is only a carrier of CF!! Praise the Lord he was born CF free!
Eleanor has enjoyed her baby brother very much. She is learning the ropes of having a baby brother in the house and for the most part has done very well with the transition.
As for her CF, we have a new CF doctor and Eleanor loves her! The doc is very attentive to Eleanor and very thorough. I cannot complain. We did leave with some new treatments. We are now on Xopenex, Saltwater 7%, and the quick start vest treatment. The vest treatment is definately helping the "little green men" that were in her chest the doctor heard at our appointment. It is also very vigorous. She cannot talk very well while it is going but as always she is taking it like a champ. She takes her "salt" very well. I have heard it is like breathing sandpaper when you are not used to it but she only mentioned that it tastes really bad. She takes it twice a day now along with the Xopenex. She also was on two antibiotics for strep that showed up on her last culture. She took them like a big girl even though one smelled horrible!
The other challenge we faced was that she only gained .5lbs in six months. This was not great news but kind of expected by Robert and I since she is not wanting to eat. We have amped up her diet so we can put on the pounds without other measures right now. She now drinks supermilk...whole milk with 1/4 cup heavy cream and chocolate syrup. Bacon, two pieces every morning, lots of homemade ranch dip, and smoothie (more like high calorie milkshakes!)
She is doing good with all the new changes in her life. Pray for her to have a attitude of wanting to eat and continue to take her treatments.
She will turn 4 on the 28th of this month! We are having a gymnastics party and she is super excited! Hope to do better with the blog and will link some pix of thomas!
Her culture came back normal from her visit and that is a definate praise!!
Coleen
I know I am behind...most of you know by now that Thomas Harold Guilford arrived on October 7, 2011! He is precious and looks like he is going to have red hair like his Eleanor! He arrived via C-section, after a day of being induced, at 11:00 pm. It was a special day as it was my grandmother's birthday and his middle name was her husbands first name. :)
Thomas is growing like a weed and he has a VERY PROUD Big Sis! Eleanor loves him so much! She wanted to wear her big sis shirt everyday after he was born! I am also happy to announce that Thomas is only a carrier of CF!! Praise the Lord he was born CF free!
Eleanor has enjoyed her baby brother very much. She is learning the ropes of having a baby brother in the house and for the most part has done very well with the transition.
As for her CF, we have a new CF doctor and Eleanor loves her! The doc is very attentive to Eleanor and very thorough. I cannot complain. We did leave with some new treatments. We are now on Xopenex, Saltwater 7%, and the quick start vest treatment. The vest treatment is definately helping the "little green men" that were in her chest the doctor heard at our appointment. It is also very vigorous. She cannot talk very well while it is going but as always she is taking it like a champ. She takes her "salt" very well. I have heard it is like breathing sandpaper when you are not used to it but she only mentioned that it tastes really bad. She takes it twice a day now along with the Xopenex. She also was on two antibiotics for strep that showed up on her last culture. She took them like a big girl even though one smelled horrible!
The other challenge we faced was that she only gained .5lbs in six months. This was not great news but kind of expected by Robert and I since she is not wanting to eat. We have amped up her diet so we can put on the pounds without other measures right now. She now drinks supermilk...whole milk with 1/4 cup heavy cream and chocolate syrup. Bacon, two pieces every morning, lots of homemade ranch dip, and smoothie (more like high calorie milkshakes!)
She is doing good with all the new changes in her life. Pray for her to have a attitude of wanting to eat and continue to take her treatments.
She will turn 4 on the 28th of this month! We are having a gymnastics party and she is super excited! Hope to do better with the blog and will link some pix of thomas!
Her culture came back normal from her visit and that is a definate praise!!
Coleen
Monday, March 14, 2011
Bronch Results
We received the Bronch results in several different batches so I have waited to post until we know all of them. The day of the bronch went well. Eleanor only had a little anxiety...mostly about seeing the guy who does her throat culture. She was very happy when we said that she would not be seeing him today. We saw our doctor and all the pre-op nurses. Eleanor even walked off with the anesthesiologist without even looking back. So before the procedure Eleanor did wonderfully. A wonderfully comforting thing happened right before she was taken down. The doctor came in and talked with us and said, "Do you mind if I pray?" "We would love that!", was our reply! How awesome...to know that the person whose hands she will be in wants to pray before the procedure...calm and peace were given to us from the Lord.
We waited about 30 minutes and the doctor came back up and said that she looked better than he expected. (Yeah!) He saw no signs of any problems and what secretions she did have; he sucked out.
Now we were led back to her room where she was waking up. This part did not go as well...the meds made her a little angry. She was not happy to have an IV in her foot. She tried to pull it out several times. Let's just say that when we left the hospital and finally got in the car we were wondering what child that was that woke up from the procedure. She did start acting normal when we got to the car and proceeded to talk and tell us she was hungry.
That afternoon she was on the couch playing with Bubs Ipad when she just up and fell asleep on me. THIS NEVER HAPPENS. We figured it was just the after effects from the procedure. Well, she got goosebumps all over her then proceeded to get hot...like on fire hot. We took her temp and it was over 102. So we called the doctor and were instructed to give her some tylenol to help. We could definitely tell when it kicked in. She was up and talking again like her normal self. The fever went away with the medicine and when she woke up the following morning she pronounced herself well!
RESULTS
The results of the test were really good. Her first culture came back normal...this would have been the one to show if she had any pseudomonas. The second culture which would have told us if she was growing any fungus or mold came back normal! The third one which tells us if she had acid reflux came back positive. It measure 4+ which is on the high end. It is weird because we have never noticed it but then it was mentioned that it can cause a cough. Hmmm...wonder if that is what causes the unexplained cough sometimes.
Her labs came back good except her Vitamin A level was low again. We will be taking an extra dose of the vitamin to help bump it up.
Those are our results! Praise the Lord we received a good report. It could have been must worse. We are very thankful.
Thank you for your prayers and support. We are already back on our 28 days of TOBI. She is handling it really well. She is such a trooper!
Coleen
We waited about 30 minutes and the doctor came back up and said that she looked better than he expected. (Yeah!) He saw no signs of any problems and what secretions she did have; he sucked out.
Now we were led back to her room where she was waking up. This part did not go as well...the meds made her a little angry. She was not happy to have an IV in her foot. She tried to pull it out several times. Let's just say that when we left the hospital and finally got in the car we were wondering what child that was that woke up from the procedure. She did start acting normal when we got to the car and proceeded to talk and tell us she was hungry.
That afternoon she was on the couch playing with Bubs Ipad when she just up and fell asleep on me. THIS NEVER HAPPENS. We figured it was just the after effects from the procedure. Well, she got goosebumps all over her then proceeded to get hot...like on fire hot. We took her temp and it was over 102. So we called the doctor and were instructed to give her some tylenol to help. We could definitely tell when it kicked in. She was up and talking again like her normal self. The fever went away with the medicine and when she woke up the following morning she pronounced herself well!
RESULTS
The results of the test were really good. Her first culture came back normal...this would have been the one to show if she had any pseudomonas. The second culture which would have told us if she was growing any fungus or mold came back normal! The third one which tells us if she had acid reflux came back positive. It measure 4+ which is on the high end. It is weird because we have never noticed it but then it was mentioned that it can cause a cough. Hmmm...wonder if that is what causes the unexplained cough sometimes.
Her labs came back good except her Vitamin A level was low again. We will be taking an extra dose of the vitamin to help bump it up.
Those are our results! Praise the Lord we received a good report. It could have been must worse. We are very thankful.
Thank you for your prayers and support. We are already back on our 28 days of TOBI. She is handling it really well. She is such a trooper!
Coleen
Monday, March 29, 2010
CF and Sputnum Culture
First the FABULOUS news!! We had a normal sputnum culture!! Yeah!! I am sooooo happy! The nurse called me this afternoon and I cannot tell you how great this is... :) Yeah!!
Now for the not so good news...Eleanor and her Zenpep did not get along this weekend. On Saturday she had 6 BM's and the last two were really bad. So I freaked out and changed her back to her creon on Sunday. Well, it turns out that it is normal for her body to go thru the bad poops while her system is adjusting to the new enzymes...so it was a bad decision for me to switch her back. UGH! So we are back on Zenpep...pray her bottom doesn't get to raw and that her bad poops only last one day this time.
Coleen
Now for the not so good news...Eleanor and her Zenpep did not get along this weekend. On Saturday she had 6 BM's and the last two were really bad. So I freaked out and changed her back to her creon on Sunday. Well, it turns out that it is normal for her body to go thru the bad poops while her system is adjusting to the new enzymes...so it was a bad decision for me to switch her back. UGH! So we are back on Zenpep...pray her bottom doesn't get to raw and that her bad poops only last one day this time.
Coleen
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