Welcome to the life of Eleanor Guilford! She is a sassy, cute three year old who loves to run, read, and ramble on about anything...did we mention she just happens to have CF? Follow our struggles, triumphs and everyday lulls...

Monday, August 16, 2010


We started TOBI last Friday and she has done well.  Our cough is already here and it sounds bad.  The summer cold has really never gone away.  Her nose did stop running but now it is really stuffy.  She is having a hard time adjusting to her new schedule.  She seems to be really tired while doing her night treatments but then when she gets in bed she talks for almost an hour.  Then she wakes up before she should the next morning and is ill. 

She is going through a two year old stage right now.  She is happy and then all of the sudden she is not happy with the way things are going and we have a little breakdown.   Ah, the strongwill of my two year old...I am thankful for it as it keeps her going with her fight against CF but boy sometimes it makes for a difficult day.  We have to take the good with the bad. 

Prayer for my grandmother is still appreciated she is back at the nursing home but she is still having issues.  Prayer for Eleanor during her "stage" is certainly appreciated. 

Funny Story

Eleanor went to church this week and was asking all the way if she was going to see Ms. Amber.  I told her yes...she would ask about every five minutes.  When we got to church she was ready to get to her classroom.  This is a big deal because it usually causes anxiety when we tell her she is going to church because she does not want to be away from mommy and daddy.  We opened the door and she ran right to Ms. Amber and gave her a big hug and started talking a blue streak.  This is how we left her when we went into church and she was still talking when we got back.  Such a great thing now that she does not cry when we go to church!


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