Welcome to the life of Eleanor Guilford! She is a sassy, cute three year old who loves to run, read, and ramble on about anything...did we mention she just happens to have CF? Follow our struggles, triumphs and everyday lulls...

Wednesday, October 20, 2010

Pumpkin patch and TOBI

Today we went to a pumpkin patch with our some of our friends.  Eleanor had a blast!  I will upload some pictures so you can see the joy on her face.  We have been busy lately going to football games, and other events so I have not had much time to blog. 

We have been on our TOBI and it seems to be effecting her more this time than last time.  She wakes up with a raspy voice in the morning and seems to be coughing more.  It is a good and bad thing for me.  This is what the TOBI is supposed to be doing but in the back my mind I keep thinking did she have something?  Did I miss it? 

She is so active now and we are finally able to get back outside so we have definately been exposed to more germs but we cannot live in a bubble.  I cannot keep her locked inside either.  To see the joy she experiences when we go to the park and play with her friends or just go outside to swing.  Words cannot describe it.  So, I am telling myself if she did have something the TOBI is just doing its job and getting rid of it.

I will try to post the pictures of the pumpkin patch tomorrow.


Friday, October 8, 2010

Back again...

It has been a whole month since I posted.  Well, we have been busy during our off TOBI month.  We went to the Park, played outside on the porch, and went to visit Nanny and Bubs.  We have so much to be thankful for and I cannot express the gratitude I feel for everyone's prayers over the last month.  I promise you the prayers were felt and I still feel them.  Thank you to the prayer warriors!!

It is late so I will try to get on and post more about what is happening in our life but I wanted to share a few pictures...
 Giggling with Bubs in Hartford
Sitting with her "friends" in Hartford 

                                                        Playing the IPad with Bubs.

                                                Wearing Daddy's hat while Tail gating.

                                             What a precious picture with Cousin Jessica!

First Waaaar Eagle! Hey! She had a blast!

We have started TOBI again. Her cough is back after a day and a half.  I know it is working but I do not like the cough!

More later,