Welcome to the life of Eleanor Guilford! She is a sassy, cute three year old who loves to run, read, and ramble on about anything...did we mention she just happens to have CF? Follow our struggles, triumphs and everyday lulls...

Monday, February 7, 2011

Date has been set...

We have set a date for Eleanor's bronch.  It will be President's day.  She will not be told about it until right before.  I know this seems bad to some of you but she still cries at the thought of visiting the doctor's office.  Now, mind you, she is a big girl and the tears stop after we tell her what they are going to do.  She recites listen to my chest, to my ears, show them my teeth, and then we will be all done!!  Most of the time this is what happens and thankfully we have not had any shots during our last few doctor's visits.

However, this time I cannot tell her that.  She will have to get another IV (if you recall last time they did this she "spilled" all over the nurse).  I have trust and FAITH in God that all will go well, but I simply cannot tell her about it now and have her tear up everytime we talk about it.  She is just so smart and has such a great memory. 

We have to check in at 6:30 am and the outpatient procedure will begin at around 8:00 am.  She will be asleep for this procedure.  Most people with CF call it a "bronch" but medically it is called a bronchoscopy.  Now some of you are going to be tempted to google it to see what it is, that is fine.  Do know that there are all different types of opinions and articles that can be misleading on the internet. 
Basically, they are going to thread a scope either thru her mouth or nose into her lungs to look at them.  They will be able to see how much mucous she has in there, how her actual lungs look and to take a sample of her mucous from her lungs that will be more accurate than the throat cultures she gets every quarter.  ( those are about 70% accurate) It will give us a good reading about how we stand.

Please pray for Eleanor and for her wonderful CF doctor that will be performing the procedure.  It is an outpatient procedure so she will not be staying the night.  We will get to come home afterwards. 

We are still on her TOBI and will end right around Valentine's day.  Bless her, she has been a little trooper.  She got to play with some friends last night and she is worn out today! At least it is in a good way.

More later,

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