Eleanor slept until 845 this morning. She is still staying awake until 1030 because she is not used to going to sleep earlier. I know after about a week she will get back into the routine. We woke up this morning and did our routine. Except after breakfast I am supposed to give her the TOBI treatment and in my fog this morning I gave her the Pulmozyme. No harm done I usually give her Pulmozyme at night time in this part of the treatment. So I had to give her the TOBI right before nap time and it put her a little behind going to sleep.
Funny story...I was changing her clothes this morning so we could go to the grocery store and she started wimpering. I was not really sure why then it hit me she thought we were going to the doc's office. So I told her we are going to Publix to get some food and get you a cookie! She looked at me and smiled the biggest smile and then said COOOOKIEEE!! All I heard on the way to the store was "I am going to get a cookie!" We get to the store and she asks the man "Please cookie" and "Thank you" then proceeds to look at it for 5 minutes like it was something she had never seen before. She takes a bite and then decided she doesn't want it. So we brought home a cookie with one bite out of it. At least it provided a distraction while I shopped!! It's the small things we have to be thankful for....
Also ( you will notice I will talk about her BM's on her sometimes; soon I will post and tell you why I have to watch them so closely) we had a solid normal BM...YEAH!!! Finally, it has been two weeks. Only a CF mom could completely understand my joy but feel free to do a little dance with me as well.
She is still asleep for her nap right now. I hope everyone is having a great day!
Praises,
Coleen
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