Welcome to the life of Eleanor Guilford! She is a sassy, cute three year old who loves to run, read, and ramble on about anything...did we mention she just happens to have CF? Follow our struggles, triumphs and everyday lulls...

Monday, February 8, 2010

Eleanor's picc line is out!! Yeah, praise the Lord.  She did not like the tape coming off but after that she did great.  We are home and she is out!  It is almost 5 and she is still asleep.  I will have to wake her up in a few minutes so she can sleep tonight.
Now we will be back to her daily routine. She is now going to be on Albuterol (twice a day), Tobi (twice a day for 28 days), Pulmozyme (just once!) and her vest twice a day for 15 minutes.  We do her tobi on 28 days then off 28 days.  Her next appointment in Pensacola is on March 25.  They will culture her again and will (hopefully) will find out that the psuedomonas is gone and the iv treatments worked.
I will keep everyone updated thru this blog...that is all for now...will post later.

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